Wednesday, February 24, 2016

CDC Report Doesn't Tell the FULL Story...

In the last 24-hours I have seen many people's opinions about what this means and going a step further to determine  why this is the case. This was part of a response which was provided by Charlay Banjee

"What I've been thinking is that no where in the CDC report does it point to the following as factors of HIV contraction for Black MSM: stigma, racist medical practices, heteronormativity, lack of self-efficacy, historical lack of cultural competency especially in consideration of intersectionality within msm populations, economic disenfranchisement, lack of Black-led health centers (non profits and hospitals/clinics included), HIV medicine-induced illnesses...

Also missing is how "msm" communities and practices therein have specific needs that no universal plan of action can "fix." The myopia of using "msm" as an all-inclusive label speaks to the laziness of the CDC in recognizing that Black queer- and straight- identified people are complex. Black DL men do not have the same concerns as openly gay Black men. Some "men" do not identify as men. The young do not live as the older. Those who try to claim risks for a community need to know the community. The CDC does not know.

Reports like this increase the anxiety that perpetuates the same behavior that puts ppl at risk for contacting HIV. Dr. Jeffrey McCune said it best that we need paired with these reports possibilities of getting toward a lower rate of contraction. Also, the panic over the 1 in 2 number, though understandable as we want fewer people contracting HIV, speaks to our overall internalized stigma of the virus and too shows rightfully so what little faith we have in current modes of prevention. It's a thin line: prevention for health's sake versus prevention for alleviating our own fear.

We can do the work but I'm not sure we know anymore what that work looks like because for so long it has been the antithesis of Black radical empowerment. I don't have the answers, and it's ok that we don't. We've yet to be honest enough."

As a person who has worked tirelessly regarding HIV education and prevention the statistic was not surprising. Additionally it is a known fact that HIV prevention occurs in cycles. The money and focus was on white MSM early on and then their numbers started to drop. Then the money and focus gets moved to the next group. We know that there are social inequalities which contribute to HIV exposure. Poverty, lack of education, drug use and the list goes on. What is the answer?

CDC data collection and reporting leaves a lot to be desired in every realm of epi-data. The purpose of the data which was reported at CROI was to sound an alarm, which those of us working in HIV prevention, has already known. Human behavior is very dynamic and complex. That being said, communities of color will have the best chance of tackling HIV rates in their own communities. "Nothing about us, without us." This is why we have been trying to engage the faith-based communities and leaders to take the lead on HIV. This has been something that many will not do. When was the last time that we heard Reverend Al Sharpton talking about HIV infection rates in the black community? 

Dr. Jeffrey McCune shared his thoughts regarding the announcement of the data by saying, "Scientific Racism is when scientists predict 50% of "black gay men will have HIV" before it even acknowledges that we exist outside a larger white gay paradigm. Consequently, suggesting something to the tune of "if you black and gay HIV is inevitable, just cause you black and gay." And to that point, scientific racism is when such predictions aren't immediately followed up with preventative measures to curb such probability. Finally, I am curious as to what such predictions do in terms of discouraging HIV-testing and conjuring all types of anxieties around sex and sexuality within the black gay community, as well as the impact of such salacious news within the communities in which they live, reside, and love."

Please let me know you thoughts regarding the release of this study and this data...

Wednesday, June 25, 2014

ICW issues call to action after recent murder of HIV positive woman.



ICW calls for education of the public on HIV transmission routes and hindrance of violence against HIV positive women as a result of a monstrous murder in Texas, USA


ICW North America
June 24th, 2014

Washington, DC


The International Community of Women living with HIV (ICW) and the North America (ICWNA)chapterare shocked to learn the news of the murder of Elisha Henson, an HIV positive woman from Texas, USA this past May.  Her murder was as a result of the ignorance of the murderers of the ways that HIV is transmitted and the overall social stigma towards HIV positive women.

According to several media outlets, Justin Welch and Rosalind Welch Smith, have been charged with Henson’s murder. Authorities believe that the alleged perpetrator, Justin Welch, killed Ms. Henson after learning her status following a virtually zero-risk transmission encounter: receiving oral sex, female to male.

ICW thereby call for massive action towards educating people of the possibilities of HIV transmission. This atrocious event teaches us that the lack of adequate information puts vulnerable people, especially HIV positive women, to extremely dangerous situations followed by stigma-fuelled reactions by the public.

Enough is enough!” said Jessica Whitbread, ICW Interim Global Director, “The team at ICW, are absolutely appalled at the fact that there is not more outcry for such a horrific event. Our heart goes out to Elisha and her loved ones.”

Fear of the unknown, mainstream stigma and inaccurate facts can lead to an ignition of anger leading to violence in those where the potential already exists. As a community we should ensure that violence against women, violence based on a woman’s status, and violence based on ignorance of the facts and lack of mainstream education comes to an end.

Accurate and easy to understand facts about HIV transmission needs to be infused into the minds of the general public via far-reaching media outlets and not just contained within the HIV community” added Karen Marcinczyk, ICWNA Coordinator.

We must end the criminalisation against positive women including disclosure laws which only encourage stigma and validate the idea that being HIV positive is a crime that must be prosecuted. We must stop criminalization to guarantee that other HIV positive women in the world do not suffer the same fate.

ICW asks that all communities, including the HIV community, the media and law enforcement begin to work together to eliminate violence against positive women, seek justice and provide responsible, accurate and stigma-free communication to the public which puts their trust in them.

For more information contact:

Karen Marcinczyk, ICW North America Coordinator

Arinola Elizabeth Nite, ICW Communications Associate